Friday, June 27, 2014

Thurs, June 26th - It felt good to have us all under one roof again. Cole finally had a complete night that was absent of the continual interruptions that he had at the hospital. He looked and felt great in the morning. Enough so that his Friend Jacob came over and spent most of the day with him. Cole wanted to go outside, but it was clear that it was too hot and his body was not ready for much of it. So we returned inside and watched a movie. Denise and I are getting used to his new regimen of drugs that we need to administer at particular dates and times. I think I need to create a small spreadsheet to keep tract!

Cole received several visitors in the evening and we shared Denise's birthday cake that we were unable to have the night before because it had gotten too late.

His treatment for the next 20 days or so will consist of weekly (Wednesday's) outpatient chemo at the hospital and the remainder of drugs will be given at home. His weekly outpatient visit consists of being put under anesthesia and given his triple dose of chemo into his spinal column, followed up by a 2 hour chemo infusion and then 1 hour of monitoring. As long as all goes well,he is fever free and his ANC counts are good, then he is able to come back home.

In general Cole is feeling pretty good and he is in good spirits, but his body is pretty tired most of the time and requires rest. I have continually let him know of all the love and well wishes that he has received from all of you and he is very appreciative, as are we!!! I am also completely amazed by the outpouring of support from people that I have barely crossed paths with or in some cases that I don't even know. It is very humbling and heartwarming!

Many of you continue to ask for the Cole Strong 28 bracelets. Thank you! We do have more on order, but they are taking longer than we would like to receive them. So hang in there, we haven't forgotten about you. I will post here on this blog and on Facebook when our next shipment arrives and we will make sure all get as many as they would like.


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