Cole's Journey: Setback

Friday, April 13, 2018

Setback

Apr 13th - Shortly after my blog post last night, Cole suffered a medical setback and our plan for his CAR-T immunotherapy next week is now off. We will be continuing to test / monitor him until his doctors formulate a new plan for him. Please continue to pray for him!

Many of you have asked what you can do. At this point I would simply ask that you to mail him a card. He loves to open them and read the nice messages.

His mailing address is:
Boston Children's Hospital
c/o: Cole Malone / Room 611
300 Longwood Ave, Boston, MA 02115

Cole gets a late night MRI

1 comment:

AnonymousSeptember 12, 2018 at 10:22 AM
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About Cole

Cole was born in September of 2004. He was one of two beautiful boys that entered our life that day. Yes he is a twin. Fast forward to a few weeks before his 2nd birthday and he and his brother Michael were at the doctors for their 2 year old check up and all looked good until the doctor said go get your finger poked (CBC blood test) and then you boys are out of here. Unfortunately Cole's counts came back unusual and the next thing we know we are at a local oncologists office and then admitted to the hospital where further testing showed that he had Pre-B ALL Leukemia. At the time we had no idea what this meant. However, soon after we became more educated on the subject of childhood cancers. We found out that this form of cancer had about an 80% chance of cure with 3 1/2 years of chemotherapy treatment. Cole finished his treatments like a trooper and our family got our lives back. Cole was able to attend school from pre-k on to just finishing 3rd grade. Along the way he and his brother started playing recreational baseball, soccer and flag football. The last 3 years they both have been playing travel baseball and Cole has been very healthy and cancer free. Now, nearly 5 years since Cole's last chemo treatment, we enter another Leukemia adventure with Cole, as a routine eye exam for the kids showed that Cole's optic nerve was swollen. The doctor told us that something must be pressing on or causing pressure on the optic nerve and because of his history we immediately did further testing that confirmed that his Leukemia did indeed return. I am writing this blog to try to keep all that are interested up to date with the latest regarding our beautiful boy. Thank you all for caring and please keep us in your thoughts and prayers!