April 12th – We arrived in Boston over this past
weekend and its pretty cold!!! On Sunday night we were treated to a Bruins Game. Cole watched the
game from a luxury box, fist bumped the players between periods and met Bruins
Player Brian Gionta after the game. Brian spoke with Cole and presented him
with his game used stick which he had signed for Cole. It was an incredible
night.
On Mon the 9th, we went in to the Jimmy Fund
Clinic at Boston Children’s Hospital for some basic tests and we also met with
his Oncology and Immunotherapy lead doctors. The lead doctors again reviewed
his medical history, discussed the plan of action going forward and also had
some treatment paperwork for me to sign. After that we had some tests scheduled
for later in the day, so we made a quick lunch trip to the Faneuil Hall
Marketplace to get some of Cole’s favorite Clam Chowda and my favorite lobster
role.
We had Tuesday off, so we made a visit to the New England
Aquarium and after a trip to the North End for some Italian food followed by a
visit to Modern Pastry for some dessert.
The plan called for Cole to come in for more tests on
Wednesday during the day and then get admitted into the hospital. On Thursday
we would start a 4 day regimen of pre-treatment chemo, then 2 days rest and
then get his CAR-T cells. If all goes as planned, he will get his cells on Wed,
April 18th. So far we are on schedule.
Will send another update as things progress.
Cole and his chowda
Cole with Brian Gionta
Cole and I at the New England Aquarium
No comments:
Post a Comment