Oct 27th - Nov 8th - On Mon the 27th, Cole has his Hickman line surgically implanted and we are then admitted to transplant floor for the remainder of the transplant process. If all goes well, we expect to be in the hospital for about 5 weeks. On Tues the 28th, Cole begins twice a day TBI (Total Body Irradiation). This continues until Friday afternoon. He handles this process like a trooper and is ready to trick or treat in the hospital. It is actually a reverse trick-or-treat. This means that anyone entering his room needs to bring him candy and he got plenty. The day before Halloween brought a visit to our floor from a rookie Red Sox pitcher named Drake Britton. He was dressed as Superman and visited and took pictures with all the kids in the transplant wing.
On Saturday and Sunday Cole received Cyclophosphamide, a chemo drug used to wipe out the remainder of his immune system in preparation for the transplant. On Sunday, his brother Michael arrives in Boston and enjoys the remainder of the day with him. Our good friends Art and Renee also came up Sunday and spent the night with us. On Monday, Denise's sister Michelle, husband Steve and son Bryce came for an overnight visit. Thank you all for the support. It was great to have you all here with us.
Around 1:30pm, Michael is brought into the OR for the bone marrow harvest. He is done and in his own room recuperating a few hours later. They take about 400cc of marrow, about 5% of his total marrow. Around 8:30pm, the marrow is ready to be infused into Cole. Michael is brought up to Cole's room and was able to press the start button to begin the infusion. What an amazing moment! Michael is then brought back down to his own room to rest.
Within a coupe of days Michael is feeling like himself again and on Saturday the 8th, he will return to Florida. The rest of the week went well. Cole was feeling great until about Thursday. This is when his throat began to hurt and he began to develop mouth sores. This is expected and is due to the chemo and radiation. Once his white cells begin to recover, then this pain will reside. In the meantime, pain management is all you can do. We expect this will take a week to 10 days to resolve itself. We were warned that the 6th - 14th are typically the most difficult. Cole is fully aware of all and is being his typical trooper self. This kid continues to amaze us!
Thanks again for all of your thoughts and prayers!
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Cole in his transplant room |
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Brotherly love!!! |
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Cole in our home made Bat Mobile |
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Cole with Red Sox pitcher Drake Britton |
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Mike getting ready for his procedure |
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Mike starting Cole's bone marrow infusion |
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Mike, Cole and cousin Bryce |
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Mike and Cole goofing around |
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