In general Cole has been feeling very well. When his counts have been up, he has been able to have some fun. We did the Fenway Park tour, he again went to Faneuil Hall and went to a New England Patriots game!
His brother Michael and sister Madisen took a long weekend to visit Cole as well. I hadn't heard Cole laugh so much in many months. It was very heartwarming to see then together again.
Last week Cole received Cranial radiation because the doctors want to make sure to rid him of any un-measurable remaining Leukemic cells in his CNS.
This coming week he will have a Hickman line installed on Monday. Then he will receive TBI (Total Body Irradiation) Tuesday - Friday. Saturday and Sunday he will will receive Cyclosporine. This is to basically kill off his immune system and prepare him for the transplant.
His brother Michael (the Bone Marrow donor) will fly up on the weekend before the transplant and on Monday will donate his marrow. Michael will probably only need to be in the hospital for a day or two, but we need to be prepared for him to be in for up to a week. So he will probably stay the week no matter what.
Once the transplant takes place, Cole will need to be in Boston for about 100 days. The first month or so in the hospital and the next 2 months he needs to be nearby.
We are obviously not out of the woods yet and are still rightfully nervous about this process. I am sure sure we will be feeling better about things once we are about 3 weeks into the transplant process.
We are so very thankful for all who have been helping us though this journey and for all the thoughts and prayers!
 |
| Cole at the hospital |
 |
| Cole and Denise at the park |
 |
| Michael, Cole and Madisen at Fenway Park |
 |
| Denise and Cole at the Patriots game |
 |
| Cole with the Patriots Cheerleaders |
Keeping Cole and Michael in Prayer. Brother Strong#28
ReplyDelete