Start me up

May 23^rd – On Monday the 14^th Cole had an MRI with contrast. Later in the week we got the results and they were good. His bleed is healing nicely. This past Monday (21^st) we met with his team of doctors and discussed the plan forward. They are ready to start his CAR-T treatment again soon! Of course we are happy to hear this news; but we are also very scared at the same time. This treatment is still very new and far from perfect. But we will continue to pray and keep positive thoughts.

The CAR-T treatment includes 4 days of pre-treatment chemo and then at least 2 days of rest before they will infuse his CAR-T modified cells. The pre-treatment chemo is tentatively scheduled to start next Wed (30^th) and then if all goes well he would receive his CAR-T cells on Tues (5^th) or Wed (6^th). After the CAR-T infusion he stays in the hospital and is then watched for around 30 days, of which the first 10 days or so are the most critical.

In the meantime Cole has been enjoying Boston. Walking where we can and Uber-ing for the rest. In general he has still been feeling well. One of his favorite activities has been going to a local park and hitting whiffle balls. He has gotten to see the Red Sox on several occasions and found several restaurants that he really likes. As long as he is feeling well, we have been trying to get him out and about the city. Trying to keep his mind busy and give him a few smiles along the way. If you know Cole, the smiles generally come pretty easy! I know both my wife and I have really enjoyed this individual quality time with him.

We will be bringing his brother and sister up soon after school ends as well. This should make him and them feel better. It will also be good to have us all there during this most critical time for Cole.

Thank you all for your continued support!!!

Harvard Cole at the Cheesecake Factory

Cole hitting some whiffle balls